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Usher syndrome photography exhibition

Part of the Open Senses Festival

18 May 2017

Dr Mariya Moosajee, Moorfields Private consultant ophthalmologist and chair of the Moorfields arts committee joined artist Marcus Inniss at Moorfields Eye Hospital as they teamed up with the Open Senses London Art Festival to showcase his work.

The exhibition which opened to the public on Saturday 20 May featured print and digital media created by Marcus, a deafblind artist who uses interactive and immersive art to depict life with sight loss.

Speaking about the inspiration for his work, Marcus said: “Since my diagnosis with Usher syndrome in 2003 at Moorfields Eye Hospital, I have been very interested in organising an exhibition exploring the condition. The idea was always to create an exhibit allowing individuals to get a glimpse into the lives of those with Usher syndrome.”

Usher syndrome is a genetic condition which affects vision and hearing. Vision loss caused by Usher syndrome is due to a condition called retinitis pigmentosa, which affects the retina’s ability to respond to light and leads to a gradual progressive loss of vision. It can affect the peripheral (side) vision which makes it harder to see in dim light or the dark, and central vision, which causes difficulty with detailed activities such as reading or watching television.

Marcus went on to say: “There have been many instances where I have had to explain that I have Usher syndrome and often [people] would comment how I didn’t look visually impaired. [My work is] about breaking down stigma and stereotypes for a more inclusive world; empowering people with disabilities while at the same time, offering an insight and a better understanding of eye conditions such as Usher syndrome.”

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